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HIV/AIDS Resource & Treatment Links
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The web health boom -- with more than 40 million American adults searching the Net for health and medical information, according to a recent San Francisco Chronicle article -- has been a boon to people with questions about HIV.
But many unscrupulous sites offer so-called AIDS "cures," while some others secretly gather users' personal data or provide only obsolete material. How can you decide where to turn?
To find reliable and up-to-date HIV/AIDS information, check out the following starting points.
General Resource Links Treatment Links Regional AIDS Organizations Hispanic Resource Links
General ResourcesCDC (www.cdc.gov/hiv). CDC provides national leadership in helping control the HIV epidemic by working with community, state, national, and international partners in surveillance, research, prevention and evaluation activities. CDC’s programs work to improve treatment, care, and support for persons living with HIV and to help build capacity and infrastructure to address the HIV/AIDS pandemic. North Carolina Epidemiology (www.epi.state.nc.us/epi/hiv) This site provides access to information about HIV (human immunodeficiency virus), AIDS (acquired immunodeficiency syndrome) and other sexually transmitted diseases (STDs) in North Carolina. HIVInsite (hivinsite.ucsf.edu). Truly a "gateway to AIDS knowledge," this site is a project of UCSF, the Positive Health Program at S.F. General Hospital, the Center for AIDS Prevention Studies, and the AIDS Research Institute. HIVInsite features information for both the layperson and expert in four broad areas: medical, prevention, social/policy issues and statistics. The site provides webcasts and audio archives, frequently asked questions, the AIDS Knowledge Base (a textbook on HIV disease) and extensive information en Espanol.
AEGIS (www.aegis.com). The AIDS Education Global Information System is the world's largest repository of HIV/AIDS articles. Managed by Sister Mary Elizabeth of the Sisters of St. Elizabeth of Hungary, the site includes the CDC's AIDS Daily Summary, HIV-related articles from major newspapers and wire services as well as HIV-specific news services, a library of HIV legal cases, and publications by activists, government agencies and AIDS service organizations.
The Body (thebody.com). The Body includes exhaustive information on safer sex, HIV testing, treatment, alternative therapy and recent conferences. The "Quality of Life" section covers mental, legal, financial and spiritual aspects of living with HIV. Online forums allow users to share their experiences with others, and you can pose your own questions to one of the site's 30 expert columnists. Also has a version en Espanol. Gay Health (www.gayhealth.com) Health & HIV at Gay.com (www.gay.com/health/hiv/). Based in San Francisco, Gay.com serves the gay, lesbian, bisexual and transgender community. Topics on the Health & HIV include treatment concerns, relationships, scientific breakthroughs and their impacts, and complementary approaches to health. The channel also provides an interactive forum for people affected by HIV, with very topical and personal commentaries.
AIDS/HIV at About.com (aids.about.com). Host Mark Cichocki, an HIV/AIDS nurse specialist at the University of Michigan Health System, offers his perspective on the web's best AIDS-related sites, from prevention and activism to hepatitis and pharmacies. Subscribe to his weekly newsletter to get the latest updates. Black AIDS Institute (www.blackaids.org) Based in Los Angeles, the Black AIDS Institute is the first Black HIV/AIDS policy center dedicated to reducing HIV/AIDS health disparities by mobilizing Black institutions and individuals in efforts to confront the epidemic in their communities.
Johns Hopkins AIDS Service (hopkins-aids.edu) features up-to-date information on HIV/AIDS global conferences, upcoming events, treatment and prevention articles and a wealth of local and international resources.
HIVpositive (HIVpositive.com). This site bills itself as a "comprehensive resource to improved quality of life," and includes treatment and nutrition information, information about HIV testing, resources, and a section on "money matters."
AIDS-HIV Resource Center at HealingWell.com (healingwell.com/AIDS/). With the expressed purpose of “helping people with chronic illness get onto the road to ‘healing well,’”, this community and information resource site has a wealth of information including medical news, health information, and feature articles (such as “Olive Leaf Extract for HIV/AIDS”, “Alternative Therapy for HIV” and “Benefits of Pets in Healing”). The site also offers patient stories, message boards and chat rooms, free email @healingwell.com, free web pages (yoursite.healingwell.com), newsletters, books and directories of HIV-related web sites for patients, caregivers, and family. This effort is headed by founder and editor Peter Waite, in partnership with About.com.
AIDS Memorial Quilt (www.aidsquilt.org) To preserve, care for, and use the AIDS Memorial Quilt to foster healing, heighten awareness, and inspire action in the struggle against HIV and AIDS. SEAHORSE, the On-Line HIV & AIDS Information Exchange (www.seahorse.oxi.net). Funded by the European Commission, SEAHORSE (Support, Empowerment and Awareness for HIV/AIDS: the On-line Research and Self-help Exchange) is a comprehensive database of information and support material for people affected by HIV/AIDS, primarily Europeans. The site has good navigational tools and allows registered users to evaluate existing material and contribute their own. It also offers an on-line health professionals information exchange. Its objective is to provide its users with a means of exchanging information and experience with a wider community of users affected by HIV & AIDS. Materials are available in five languages. back to top
Treatment Information LinksNeedy Meds (www.needymeds.com) A resource for people who cannot afford medicine or other healthcare costs, NeedyMeds has information on nearly 800 programs. AIDS Meds (www.aidsmeds.com) Founded by HIV+ for HIV+ people, this site offers Treatment news, lessons, forums, information on drugs and also information on POZ magazine. Also information en español. Project Inform (projectinform.org). This comprehensive treatment website offers information in formats ranging from fact sheets on hot topics to in-depth discussion papers. Also available online is PI Perspective treatment newsletter, an "Introductory Packet" for people who have just tested HIV positive, and political action alerts from the Treatment Action Network. Much of the information is available en Español.
Test Positive Aware Network-HIV/AIDS Services and Support (www.tpan.com) The Test Positive Aware Network (TPAN), proud publishers of Positively Aware, Positively Aware en Español, and the Chicago Area HIV Services and Professionals Directory offers a website designed to provide the information and support necessary to allow people with HIV to retain control over their lives. The Body (thebody.com) is a comprehensive HIV and AIDS resource. Their pages include basic information, prevention guidelines, treatment information, links to government resources, and a discussion board where you can ask questions.
AIDS Treatment Data Network (aidsinfonyc.org/network) includes fact sheets, U.S. Public Health Service guidelines, glossaries and the Treatment Review newsletter. This site also features information about alternative therapies, access to drugs and clinical trials.
AIDS Treatment News Internet Directory (www.aidsnews.org) provides annotated links to a wide variety of treatment-related information, including conferences, treatment publications, clinical trials and alternative and complementary therapies. Archived issues of AIDS Treatment News are also available.
HIV InSite Medical Newsletters for a General Audience The Newsletter page of HIVInSite provides a comprehensive set of links to various treatment newsletters for people with HIV and their advocates. HIVInSite Editor’s Picks highlight noteworthy treatment publications. The cleanly designed and easy-to-navigate page also links to treatment newsletters for providers and researchers. A limited number of publications are available in Spanish, French, Italian and Portuguese.
My Health Channel (myhealthchannel.com). This patient care-management site responds to the unique needs of individual visitors, allowing them to chronicle daily health progress; medications, allergies, exercise, and health goals. With current HIV-related information on medications and treatments, My Health Channel seems to be targeting people with HIV and their caregivers as a major audience. The site provides an anonymous, user-friendly and secure interactive care management program for tracking lab results, medications and health status, with clear and accurate graphs and reports.
Treatment Issues from Gay Men’s Health Crisis A magazine of experimental AIDS therapies. (www.gmhc.org/health/treatment/ti.html).
The HIV/AIDS Treatment Information Service (www.hivatis.org) (HIVATIS) provides information about federally-approved treatment guidelines, clinical trials and other government programs and sources of information for HIV and AIDS.
National AIDS Treatment Advocacy Project (www.natap.org) Includes position papers on the latest treatments and therapies, information about HIV drug development, the newsletter NATAP Reports, and comprehensive reports from conferences.
HIV and Hepatitis.Com (hivandhepatitis.com) includes comprehensive coverage on the newest developments in research and treatments for HIV, Hepatitis B, and Hepatitis C. Written in reader-friendly language, this site also features HIV Treatment Live, a free, interactive telephone conference series on current HIV treatment developments.
HCV Advocate (www.hcvadvocate.org) is a rich resource for people with Hepatitis C (HCV). It includes the monthly newsletter of the Hepatitis C Support Project, HCV Advocate, a basic information packet on HCV, conference coverage, and information about support groups and clinical trials.
Immunet (immunet.org) Features information about conferences, alternative therapies and more.
All the Virology on the WWW (virology.net). Geared toward virologists and medical researchers, this comprehensive site has numerous links to sites about all aspects of virology, epidemiology and public health, including HIV/AIDS. The site also features a catalog of viral images from “The Big Picture Book of Viruses.”
Medical and Public Education and Information (www.hivcme.com) This easy-to-navigate site provides downloadable, accredited HIV CME (Continuing Medical Education) materials on current treatment issues, particularly for special populations, including infants and children, adolescents, women and the incarcerated. The site materials (such as slides and curriculum) are intended for and provided free to the HIV provider community. Visitors may also review the materials for individual CME credit.
Global Reproductive Health Forum (GRHF) (www.hsph.harvard.edu/Organizations/healthnet) is an Internet networking project concerning issues in reproductive health, rights, and gender based at the Harvard School of Public Health. The site includes an HIV/AIDS section; of particular interest is the Teenzone, an interactive area that approaches STDS, HIV/AIDS and other topics like abortion, pregnancy and getting youth involved in the HIV prevention efforts. This site is translated in Spanish.
Fight AIDS @ Home (fightaidsathome.org) A distributed computing project that uses idle computer time to accelerate anti-HIV drug design research. Download a program onto your Internet-connected personal computer to participate.
US Centers for Disease Control The CDC (www.cdc.org) maintains the some of the most comprehensive HIV/AIDS information pages anywhere. Visit them here. The CDC also maintains a page for the National Prevention Information Network .
US National Library of Medicine (www.nlm.nih.gov) is the home of the Guide to NIH HIV/AIDS Information Services and they have some very thorough HIV/AIDS Information pages .
US Health Resources and Services Administration The HRSA (www.hrsa.gov) also maintains a page containing disease and treatment information, as well as government programs for people living with HIV/AIDS, and much more. Visit their HIV/AIDS services pages .
The American Medical Association (www.ama-assn.org) is the publisher of the industry standard Journal of the American Medical Association (JAMA) and they maintain an information with news, information, and links to other medical information on the Internet. Clinical Trials The government provides a listing of clinical trials for experimental drugs through its AIDS Clinical Trials Information Service (actis.org). Clinical trials information can also be found at the Centerwatch (centerwatch.com) and HIVInsite’s Trials Search (hivinsite.ucsf.edu/tsearch). back to top
Regional AIDS Organizations back to top
Hispanic Resource Links (En Espanol) SocialServe.com http://www.socialserve.com
Bienvenidos a L.A. Shanti http://www.lashanti.org/espanol/index.html
Centro de Estudios para la Prevencion del SIDA/Center for AIDS Prevention Studies http://www.caps.ucsf.edu/espanolindex.html
Centro de Excelencia Hispana/Hispanic Center of Excellence http://www-sbp.bcm.tmc.edu/HispanicHealth/index.html
Coalicion Nacional de Organizaciones Hispanas para la Salud y Servicios Humanos/National Coalition of Hispanic Health and Human Services Organizations http://www.cossmho.org
CONASIDA http://www.ssa.gob.mx/conasida
Cruz Roja Americana http://www.redcross.org/hss/HIVAIDS/hispanic/index.html
FUNDAMIND (Text in Spanish) http://www.fundamind.org.ar/sida/index.htm
healthfinder® (Text in Spanish) http://www.healthfinder.gov/justforyou/espanol/default.htm
Hepatitis C -Uruguay (Text in Spanish) http://www.chasque.apc.org/freno/hepcespa.html
HIV In Site/SIDA al Dia http://hivinsite.ucsf.edu/spanish
HIV - Investigación Básica y Tratamiento http://hiv.hypermart.net
La Línea Nacional del SIDA de los CDC, Servicio en Español http://www.ashastd.org/nah/sida.html
National Latina/o Lesbian, Gay, Bisexual and Transgender Organization (LLEGO) http://www.llego.org/
Noticias sobre el VIH/SIDA http://www.redcross.org/hss/HIVAIDS/hispanic/more.html
Oficina/Centro de Recursos para la Salud de las Minorias/Office on Minority Health Resource Center http://www.omhrc.gov
Preguntas Frecuentes Sobre la Tuberculosis http://www.cdc.gov/spanish/enfermedades/tb.htm
Puerto de Informaci—n Sobre Enfermedades Sexuales http://www.angelfire.com/vt/pocus/
El SIDA y la Comunidad Latina/AIDS and the Latino Community http://clnet.ucr.edu/research/aids/aidscomm.html
VIH y SIDA http://www.ctv.es/USERS/fpardo/home.html
SIDA-HIV News http://www.virtualizar.com/sidanews
O Vaya Directamente al Enlace en Español http://www.fhi.org/sp/fhis.html
U.S.-Mexico Border Health Association (USMBHA) http://www.usmbha.org
Este sitio es producido y mantenido por Metrolina AIDS Project. Las conexiones a otros sitios de Internet están para los propósitos informativos solamente y no se deben interpretar como endoso por MAP.
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